Children and Youth with Special Health Care Needs (CYSHCN) & Autism Resource Guide


Children and Youth with Special Health Care Needs (CYSHCN) & Autism Resource Guide Families & Children Schools & Childcare Providers This guide provides resources and tips to help families of children with special healthcare needs, including those with autism spectrum disorder, improve their everyday health and be prepared during crises like natural disasters Search the Resource Central website for more resources with keywords: Disabled Children, Autism Spectrum Disorder, Autistic Disorder, or Health Services for Persons with Disabilities for more information. Summary Autism Speaks Natural Disaster Resources This webpage provides resources and tips from Autism Speaks to help families with autism prepare for and cope with natural disasters safely. Autism Speaks · None Summary Job Aid Be Ready: Tips for Families of Children and Youth with Special Healthcare Needs This resource provides tips for families with special healthcare needs to prepare for emergencies, including making plans, gathering supplies, and staying informed in multiple languages. Region V for Kids, EMSC Innovation and Improvement Center (EIIC) · 2021 Summary Toolkit Caring for Children in a Disaster: Children and Youth with Special Healthcare Needs in Emergencies This CDC webpage describes how to prepare and care for children with special healthcare needs during emergencies, ensuring their safety and well-being in disasters. Centers for Disease Control and Prevention (CDC) · 2024 Job Aid Emergency Preparedness Tool Kit for People with Disabilities This toolkit describes how people with disabilities can prepare for emergencies, offering practical tips and resources to ensure their safety during unexpected situations. Virginia Commonwealth University · 2007 Lecture Individuals with Disabilities & Families of Children with Special Health Care Needs, Pre/Post Disaster This webinar describes how people with disabilities and families of children with special health care needs can prepare for disasters. Family Voices · 2018 Exercise School Safety Drills and Exercises for Students With Autism Spectrum Disorder (ASD): Tips and Resources for Educators This page describes how to safely conduct school drills for students with autism, offering tips and resources to help educators reduce anxiety and ensure safety. National Association of School Psychologists (NASP) · 2020 Journal Article Human-Centered Design to Create an Emergency Care Action Plan for Children With Medical Complexity This article describes creating emergency care plans for children with complex medical needs using human-centered design, ensuring personalized and effective healthcare solutions. University of Vermont, University of Massachusetts, Columbia University, University of Rochester, Yale University, University of California San Francisco · 2025 Summary Disaster and Families of Children with Disabilities: What Every Health Care Provider Needs to Know This page describes how health care providers can help families with disabled children prepare for disasters, ensuring they are ready and safe during emergencies. Region V for Kids · 2021 Summary Emergency Preparedness for Children with Special Health Care Needs: Emergency Information Form (EIF) This webpage describes the Emergency Information Form, which helps ensure quick, accurate care for children with special health needs during emergencies by sharing critical medical details. American Academy of Pediatrics (AAP), American College of Emergency Physicians · 2022 Journal Article Access to Critical Health Information for Children During Emergencies: Emergency Information Forms and Beyond This policy statement addresses the access to important health information for children during emergencies, highlighting the use of emergency forms and additional resources. American Academy of Pediatrics (AAP) · 2023 Summary Autism Speaks Natural Disaster Resources This webpage provides resources and tips from Autism Speaks to help families with autism prepare for and cope with natural disasters safely. Autism Speaks · None Summary Job Aid Be Ready: Tips for Families of Children and Youth with Special Healthcare Needs This resource provides tips for families with special healthcare needs to prepare for emergencies, including making plans, gathering supplies, and staying informed in multiple languages. Region V for Kids, EMSC Innovation and Improvement Center (EIIC) · 2021 Summary Toolkit Caring for Children in a Disaster: Children and Youth with Special Healthcare Needs in Emergencies This CDC webpage describes how to prepare and care for children with special healthcare needs during emergencies, ensuring their safety and well-being in disasters. Centers for Disease Control and Prevention (CDC) · 2024 Job Aid Emergency Preparedness Tool Kit for People with Disabilities This toolkit describes how people with disabilities can prepare for emergencies, offering practical tips and resources to ensure their safety during unexpected situations. Virginia Commonwealth University · 2007 Lecture Individuals with Disabilities & Families of Children with Special Health Care Needs, Pre/Post Disaster This webinar describes how people with disabilities and families of children with special health care needs can prepare for disasters. Family Voices · 2018 Exercise School Safety Drills and Exercises for Students With Autism Spectrum Disorder (ASD): Tips and Resources for Educators This page describes how to safely conduct school drills for students with autism, offering tips and resources to help educators reduce anxiety and ensure safety. National Association of School Psychologists (NASP) · 2020 Journal Article Human-Centered Design to Create an Emergency Care Action Plan for Children With Medical Complexity This article describes creating emergency care plans for children with complex medical needs using human-centered design, ensuring personalized and effective healthcare solutions. University of Vermont, University of Massachusetts, Columbia University, University of Rochester, Yale University, University of California San Francisco · 2025 Summary Disaster and Families of Children with Disabilities: What Every Health Care Provider Needs to Know This page describes how health care providers can help families with disabled children prepare for disasters, ensuring they are ready and safe during emergencies. Region V for Kids · 2021 Summary Emergency Preparedness for Children with Special Health Care Needs: Emergency Information Form (EIF) This webpage describes the Emergency Information Form, which helps ensure quick, accurate care for children with special health needs during emergencies by sharing critical medical details. American Academy of Pediatrics (AAP), American College of Emergency Physicians · 2022 Journal Article Access to Critical Health Information for Children During Emergencies: Emergency Information Forms and Beyond This policy statement addresses the access to important health information for children during emergencies, highlighting the use of emergency forms and additional resources. American Academy of Pediatrics (AAP) · 2023

Families & Children Schools & Childcare Providers

This guide provides resources and tips to help families of children with special healthcare needs, including those with autism spectrum disorder, improve their everyday health and be prepared during crises like natural disasters

Search the Resource Central website for more resources with keywords: Disabled Children, Autism Spectrum Disorder, Autistic Disorder, or Health Services for Persons with Disabilities for more information.

Autistic preschooler with headphones coloring alone in class

Summary

Autism Speaks Natural Disaster Resources

This webpage provides resources and tips from Autism Speaks to help families with autism prepare for and cope with natural disasters safely.

Autism Speaks · None

Disabled child in a wheelchair being helped by a special needs carer

Summary Job Aid

Be Ready: Tips for Families of Children and Youth with Special Healthcare Needs

This resource provides tips for families with special healthcare needs to prepare for emergencies, including making plans, gathering supplies, and staying informed in multiple languages.

Region V for Kids, EMSC Innovation and Improvement Center (EIIC) · 2021

Mother helping disabled son walk in walker outdoors

Summary Toolkit

Caring for Children in a Disaster: Children and Youth with Special Healthcare Needs in Emergencies

This CDC webpage describes how to prepare and care for children with special healthcare needs during emergencies, ensuring their safety and well-being in disasters.

Centers for Disease Control and Prevention (CDC) · 2024

Job Aid

Emergency Preparedness Tool Kit for People with Disabilities

This toolkit describes how people with disabilities can prepare for emergencies, offering practical tips and resources to ensure their safety during unexpected situations.

Virginia Commonwealth University · 2007

Seven years old boy with crutches sadly looks out of the window

Lecture

Individuals with Disabilities & Families of Children with Special Health Care Needs, Pre/Post Disaster

This webinar describes how people with disabilities and families of children with special health care needs can prepare for disasters.

Family Voices · 2018

Asian disability boy learning color Painting in classroom with Autism girl in special school with female teacher

Exercise

School Safety Drills and Exercises for Students With Autism Spectrum Disorder (ASD): Tips and Resources for Educators

This page describes how to safely conduct school drills for students with autism, offering tips and resources to help educators reduce anxiety and ensure safety.

National Association of School Psychologists (NASP) · 2020

A busy and dynamic scene in the hospital emergency room, with doctors, nurses, and patients in action

Journal Article

Human-Centered Design to Create an Emergency Care Action Plan for Children With Medical Complexity

This article describes creating emergency care plans for children with complex medical needs using human-centered design, ensuring personalized and effective healthcare solutions.

University of Vermont, University of Massachusetts, Columbia University, University of Rochester, Yale University, University of California San Francisco · 2025

Disabled boy in a wheelchair enjoying a walk outdoors with his mother

Summary

Disaster and Families of Children with Disabilities: What Every Health Care Provider Needs to Know

This page describes how health care providers can help families with disabled children prepare for disasters, ensuring they are ready and safe during emergencies.

Region V for Kids · 2021

Close up of a nurse's hands holding a clipboard and stethoscope, filling in a form

Summary

Emergency Preparedness for Children with Special Health Care Needs: Emergency Information Form (EIF)

This webpage describes the Emergency Information Form, which helps ensure quick, accurate care for children with special health needs during emergencies by sharing critical medical details.

American Academy of Pediatrics (AAP), American College of Emergency Physicians · 2022

Journal Article

Access to Critical Health Information for Children During Emergencies: Emergency Information Forms and Beyond

This policy statement addresses the access to important health information for children during emergencies, highlighting the use of emergency forms and additional resources.

American Academy of Pediatrics (AAP) · 2023