A Patient-Centered Autism Research Agenda to Engage the African American Community

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The Community Autism Research Ambassador Program's Resources page by Family Voices offers tools to support African American families and self-advocates in autism research. It includes a patient-centered research agenda, educational modules on stakeholder-driven research, CDC's “Learn the Signs. Act Early.” materials, and self-care resources like affirmations and care mapping activities. These resources aim to promote equitable engagement and outcomes in autism research.

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Tags

Focus Area: Mental Health

Audiences: Behavioral Health Professionals; Families & Children; Nurses; Physicians; Public Health Professionals

Emergency Management Stage: Preparedness (Prevention / Protection)

Keywords: Community Participation; Research Design; Patient-Centered Care; Autism Spectrum Disorder; Cultural Competency; Black or African American

Institutions: Family Voices

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The information provided on this website is for educational purposes only. It does not substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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