C6 Seminar Series: Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities and Disabilities [Playlist]

• 2021

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About

This series of 10 videos discusses children and youth with special health care needs (CYSHCN) issues. focuses on improving care for children with medical complexities and disabilities. It describes the importance of working together with families in clinical research and healthcare. Experts share ideas on making healthcare more family-centered by listening to parents' experiences and involving them in decision-making. They also discuss challenges like fair compensation for families' contributions to research. Overall, it highlights the need for teamwork between doctors, researchers, and families to improve children's care.

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Tags

Focus Area: Everyday Emergency

Audiences: Emergency Managers; EMS Clinicians; Families & Children; Nurses; Physicians

Emergency Management Stage: Preparedness (Prevention / Protection)

Keywords: Child Health Services; Chronic Disease; Interprofessional Relations; Patient Participation; Pediatrics; Disabled Children

Institutions: Lucile Packard Foundation for Children's Health

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2015 Symposium: Designing Systems That Work for Children with Complex Health Care Needs Playlist 2015 · Lucile Packard Foundation for Children's Health The Future of Care for Children with Medical Complexity Virtual Café Series 2024 · Boston University, Lucile Packard Foundation for Children's Health Emergency Information Form for Children With Special Health Care Needs (EIF) 2022 · American Academy of Pediatrics (AAP), American College of Emergency Physicians

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The information provided on this website is for educational purposes only. It does not substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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